About The Face Of Just A Glimpse
Rebecca Bowdre
Born 1993 in Delta Junction, Alaska, USA
MRKH Syndrome Type II
Rebecca Bowdre was born at home in her parent’s log house in Alaska in the winter of 1993. Growing up in an agricultural valley & on a small farm, she was blessed to have been fed nutrient rich food & very little processed goods. This saved her life, as her family & doctor were not aware that she had been born with a rare genetic disorder called MRKH Syndrome. However, following her father’s death, the family moved to Georgia, & soon after many physical issues became apparent.
At the age of 16, her entire right side was starting to become slowly paralyzed. No menstrual bleeding had occurred, and unbeknownst to her, many of the new processed foods she was eating was making her ill. Weeks of doctor’s visits later, she was originally misdiagnosed as Mullerian Agenesis & told there was nothing that they could do for her. While it is true that she would never be able to have normal physical intercourse, as she was born without a vaginal canal, the doctor failed to understand the full scope of the issue, & no one recognized that the chronic fatigue, spinal, and neurological problems occurring were directly related to her in fact being MRKH Syndrome Type II.
Due to this lack of medical research worldwide, & the extreme lack of knowledge in the U.S. (very few in the medical community were even aware of a “Type II” at the time), it has taken years of research, along with many medical errors, before the correct diagnosis & the sparse current medical treatments were found.
She has now dedicated the rest of her life to being the medical and social media face for Just A Glimpse, Inc., established for the women of MRKH Syndrome & their families. This foundation will be raising funds with the goal of helping to establish a free online medical database available in every language, to bring together the knowledge in one place for her MRKH sisters, their families, & their doctors. While also seeking to fund further medical research, and will be partnering with other non-profits already established around the world in order to create medical & social awareness of this issue, helping to direct resources to vital areas, & give voice to the women suffering in silence by establishing & creating medically certified documentation & a medical curriculum of MRKH Syndrome studies to be taught in all medical colleges world wide.
It is Rebecca’s and our hope that in 5 to 7 years, this condition will also be fully covered by medical insurance in the US, to ensure proper care is available to these women, & corrective surgery is no longer a desperate hope, but readily available. With the help of others like her, local communities both small & large in the US & world-wide, the foundation hopes to push for additional insurance coverage for regular nutritional treatments to combat the multiple issues of chronic malnutrition, inverted scoliosis, seizures, other nervous system disorders, early onset osteoporosis, & more.
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